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Raising Jess is the powerful story of one family's survival when faced with adversity. Written with compassion, honesty, and humor, it tells of a family changed forever by the birth of a child with special needs, and their courageous decision to choose hope.
"I was twenty-four years old and about to deliver my first child. Oh, and I also had the chickenpox." So begins the story of a first-time mom who learns her infant daughter has severe, multiple...
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Matthew was born in September of 1997 with a rare genetic disorder called trisomy 22. His parents were told by the genetic director that he would be severely mentally retarded and never walk, never talk, or have much of a life, that they should not waste their time caring for him and put him in an institution for care.
He has endured fifteen surgeries, thousands of therapy sessions and requires 24-7 care. Although he is now twenty-one years old and...
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There is a place deep in your soul that aches when you realize that there is something not quite right with your child. "Not quite right" is not necessarily a bad thing; it's just something different than what you may have imagined. This book will take you along our journey with autism-from the beginning of acceptance to the amazing, self-directed life that can be achieved. My goal is to encourage parents and caregivers of children with special needs...
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Welcome to the twisted little mind of Amanda Winn Lee. Come take a stroll through her consciousness as she navigates the arduous- and sometimes surprisingly hilarious- journey of her family's battles with cancer. Acquaint yourself with her goofy preexisting mental condition leading up to her stint as the terrified mother of a seriously ill infant. Once the madness begins, her acerbic wit and bizarre brand of humor carry her through some of every parent's...
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Growing up is never easy, but it's even more challenging for siblings of children with special needs. At a time in their lives when all they really want to do is fit in, the reality of their situation prevents them from doing so. This book addresses many of the common thoughts, concerns, and feelings expressed by young adults who have siblings with special needs. It gets at the root of what is truly important: knowledge, empowerment, and perspective....
26) Life Planning for Adults with Developmental Disabilities: A Guide for Parents and Family Members
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A Comprehensive Guide for Parents and Caregivers! As any parent or caregiver of an individual with developmental disabilities can tell you, planning for the future of an adult with intellectual disabilities, Cerebral Palsy, severe autism, or another such condition requires hard work and good advice. While complete independence and self-reliance is out of reach for many adults with developmental disabilities, a productive, stable, and enjoyable life...
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Your Road Map to Rediscovering Joy, Fun, and Togetherness Having a child with an autism spectrum disorder may mean that you have to change your life. It can seem as though there are so many things you just can't do. But there are adventures-large and small-that kids with autism love, and they are waiting for your whole family! Just think outside of the ordinary, look for reachable sensory experiences, come prepared, and keep an open mind, and everyone...
28) Sandy My Name
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Sandy came to us through the foster system, speaking in grunts and gestures and pulling out chunks of her own hair in tantrums. As our time with her was extended, she started to calm down--at least a little. Despite her difficulties, my husband and I and our two young children had come to love her earnest brown eyes, her endearing sayings, and her efforts to make sense of the world. 'Yay,' she cried four years later, 'I get to be adopted, because...
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I was married right out of high school and bore two sons within the first two years. Needing extra income but wanting to stay home with my sons, I decided to do in home child care. I did child care for the next forty-two years. I had many children enrolled in my child care facility all with different wants and needs. One of the children I had was partly deaf. During our reading hour, I had to spend a little extra time with this child. Some of the...
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Finding out that a child has dyslexia can be shocking and confusing - and thousands of parents get this disturbing news every day. Appearing as early as when a child is struggling to say "Mama" and "Dada," dyslexia is a condition that will affect a child's ability to read, write, and understand basic language construction - and for a parent, this can be a tough reality to take in. Covering information on every stage of diagnosis, treatment, and growth,...
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Karen Nicksich and Heritage University Assistant Professor Miguel Juarez are celebrating the publication of their co-authored book, Earth Angels, a pictorial documentary chronicling the lives of "specially-abled" children. Earth Angels features the personal stories of nine families who have children with special needs. It chronicles the joys and challenges the parents of these children face on a daily basis. Heritage University social work students...
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An indispensable guide to the special challenges faced by parents of learning-disabled children as they enter adulthood, by the author of Laughing Allegra, a leading activist and parent of an adult child with LD.
In 2003 Anne Ford (great-granddaughter of Henry Ford) published Laughing Allegra, about the struggles of raising her learning-disabled daughter, and received a flood of letters from parents of children with LD, ADD, and ADHD, many expressing...
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This is a novella about spirituality and death through the eyes of a child. From the age of three Dillon finds that by sitting in his bear chair he can float out of his body. When out of body, Dillon is invisible, and can pass through solid objects and communicate with spirits. When he was eight, Dillon got a motorized tractor with an attached wagon. When his best friend, Daren, drives Dillons tractor into the road and is struck and killed by a truck,...
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Borderline Personality Disorder is a serious illness that has historically been misunderstood, misdiagnosed and mistreated. It has been wrongfully stigmatized in the medical community. It is in fact a very treatable condition, with increasingly positive results when identified early and addressed appropriately.
Thankfully, recent developments in the fields of Psychiatry and Psychology have enhanced the understanding and treatment of the Borderline...
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Kids may have fewer responsibilities than mom and dad, but childhood can still be one of the most stressful periods in life. The stresses of school, extracurricular activities, and even day-to-day family living can make kids feel overwhelmed and distracted. To make matters worse, children have very little control over the events in their lives, and haven't had as much practice managing stress as adults. In Parenting Your Stressed Child, you'll learn...
36) Parenting Your Out-of-Control Child: An Effective, Easy-to-Use Program for Teaching Self-Control
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Most children learn to stop throwing temper tantrums, lying, refusing to go to bed or take a bath at an early age. But some have trouble with impulsivity and self-control, problems that, if left unchecked, can lead to more serious long-term issues that can even cross the line into crime and delinquency. This book offers a sound and safe step-by-step program for heading off conflict and getting your child to cooperate. This step-by-step approach concentrates...
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How to train a Superhero: A Story of Autism is a must-read for all parents. This book was written to encourage and inspire any parent or person, not just parents of children with disabilities. Teresia shares her journey of raising two sons on the autism spectrum. Within these pages, there is laughter, tears, passion, and encouragement as Teresia shares their search for diagnosis, the challenges they faced training them up and her personal testimony...
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"Friends of Children with Special Needs" is a compilation of narratives, speeches, reports, articles, and other firsthand accounts that tells the history, work, and current activities of Friends of Children with Special Needs (FCSN). FCSN is a ground-breaking organization run by many dedicated workers and volunteers who hope to fill the emotional, physical, social, and any other needs of families, who have children with special needs. These special...
39) Sophia's Gift
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Sophia's gift was her life.
This is a beautiful story of a child who taught her family and others to embrace life and love. Though born with significant disabilities, she inspired others to experience life with a unique and wonderful perspective.
Less than one week after celebrating her sixth birthday, Sophia suffered a heartbreaking accident in her wheelchair. Her family was determined to find answers for how a tragedy such as hers was even possible....
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The Cankered Rose and Esther's Revenge begins the author's dramatic journey of adopting his teenage daughter with severe attachment issues in Seattle. The heartbreak of then seeing Cordelia "stolen" by the efforts of his former wife and the child-welfare legal complex in Los Angeles, alongside that of the trauma of being denied during efforts to reunify with her are each foreshadowed here. Issues surrounding adoption trauma, parenting children with...
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